This is an update for Day 29; When I arrived at hospital this afternoon Natalie had already had her occupational therapy and was finishing physical therapy. Her wonderful speech therapist/pathologist, Ms. Stephanie, greeted me in the hall and we walked in to Nata’s room togther as the PT was winding down. I could see in Natalie’s eyes that she was tired…movement, exercising muscles she does not control, is not only exhausting it is painful, and takes a great deal out of Natalie’s already slim reserves. However, one of her greatest allies in this battle back is Nata’s own will to overcome this thing called Guillain-Barre Syndrome (GBS). Today we watched our tired and pained girl work with Ms. Stephanie and actually say several words using a device that transfers air over the vocal chords…..What an amazing thing! Literally the first words we have heard from Natalie since Jan and I joined her in crying as the doctors placed the life-giving breathing tube down Nata’s throat on July 3rd. As Natalie’s autonomic nervous system continues to recover not only does she have the pain and fatigue, but we are noticing that our simple touch to her skin can feel like fire to Natalie..and more than once tonight she has let the nurse and me know she thinks we left a glove in the back of her throat! Both signs of confused nerve messages so common with GBS at this stage.
Thank you for your continued thoughts and prayers for healing, for peace, for decreased pain and for wisdom for Natalie’s entire treatment staff.